04-29-2015, 07:39 PM
Was not aware/familiar w/ the malady at issue, but certainly am familiar w/ the process of websleuthing a myriad of ailments. Finding out, and confirming, specifics is very helpful. FWIW, online communities can be great for support, but I've found that the nature of reducing one's story to words, more often than not makes it, whatever "it" is, sounds worse to the reader(s) than the writer intended "it" to sound.
I'm gonna go out on a limb, but I'm pretty sure that if you call around to as many of the research hospitals as you can find, that at least a few of them will be able to hook you up w/ knowledgeable personnel that will help you get a better handle on your situation, before you incur the expenses associated w/ missing work. Eventually coverage may be an issue, is it medical, or vision... yada, yada. But before that bridge has to finally be crossed, you ought to be able to get more info from the research community that deals w/ your condition. Good luck.
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I've had pretty good luck "dialing for referrals" w/in the research communities for several medical issues over the years, basically just trying to garner info before embarking on a treatment plan. That way, by the time you do embrace treatment, you'll have a better idea of what to expect. Online communities may be a good place to reach out to, to seek referrals. A few hours of sleuthing to get a better handle on your game plan, is probably well worthwhile.
I'm gonna go out on a limb, but I'm pretty sure that if you call around to as many of the research hospitals as you can find, that at least a few of them will be able to hook you up w/ knowledgeable personnel that will help you get a better handle on your situation, before you incur the expenses associated w/ missing work. Eventually coverage may be an issue, is it medical, or vision... yada, yada. But before that bridge has to finally be crossed, you ought to be able to get more info from the research community that deals w/ your condition. Good luck.
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I've had pretty good luck "dialing for referrals" w/in the research communities for several medical issues over the years, basically just trying to garner info before embarking on a treatment plan. That way, by the time you do embrace treatment, you'll have a better idea of what to expect. Online communities may be a good place to reach out to, to seek referrals. A few hours of sleuthing to get a better handle on your game plan, is probably well worthwhile.